18 January, 1999, continued
I think there is quite a lot of curiosity about disability and what it's like. I have written elsewhere about my emotional attitudes and adjusting to frustration. I have had to write in some detail about my physical needs in order to stay with strangers on my forthcoming trip. I am pasting my e-mail up here so that you may understand some of my limitations.
dear Kim
Here are my answers and my questions:
>
> You say that you prefer
> the company of adults but are going to be hosted by a class of your age
> group. Will this be comfortable for you?
Not very. I have very little in common with children my own age. I am not
used to their company, not having been in school for 6 years, but I get on
just fine with my brother who is 14. It depends on how much time I am with
them, and I am sure they have very interesting parents. I can't always
keep up physically either. The able-bodied get up and go with much more
spontaneity than I can muster, and they rush from task to task when I feel
as if I've only scratched the surface. I'm sorry if this is a spanner in
the works. I am interested in what the trip up country involves - where
to, why/what is the purpose of the trip and whether not being around for
the whole time would be a disadvantage.
>We will endeavour to put
> together a wide range of experiences for you. As we now have a green
> light to proceed, I am scouting out what is available in your time frame.
> I will apprise you and you may comment as you see fit. Give me a few
days
> and I will provide more details.
Goodee. I want to go out in a boat beyond the city if that's possible - my
guidebook recommends the Tongi but I'm open to suggestions from local
experts. I'd also like to hear some live classical music of the Indian
tradition if that's possible and talk to people like your wife about
development. What other ideas have you got?
Other rather basic questions I have: what is the temperature/climate
likely to be like? What about clothing? What is appropriate (socially and
climatically)?
>
> One thing that is lacking from all that I know is the actual details of
> your needs. My impression is that you are confined to a wheel chair and
> are unable to speak.
Quite right.
>You seem to be able to use a computer, ride in a
> kayak, jump from an airplane, and canoe. All of this suggests some kind
> of physical ability. Basically, I am not sure of your physical
> capabilities.
I am impossibly useless with my body, being unable to do anything all
by myself. The important thing for you to realise is that this includes
communication which is A Very Sensitive Issue for me, because being
dependent on hands-on help makes me very liable to be viewed as some sort
of fraud. I am bringing with me a short letter of introduction from my
clinical psychologist because the whole business of meeting new people can
be fraught. This is because I am not disabled like other disabled people
and have a peculiar combination of ability and disability.
When I am lying on the floor (or bed) I cannot lift up even my head, cannot
roll right over or scrabble upwards at all. I am a beached whale, whether
prone or supine.
I have a very surprising sense of balance given my lack of physical
coordination and can sit on a walking horse without help - but I need
walkers on either side to prevent me tumbling if I lose my balance. In 10
years of riding I haven't fallen off yet and have only had to be caught 2
times. My sense of balance allows me to sit in a canoe because the small
cockpit prevents me from falling in any direction, but I cannot hold onto
or wield a paddle - I go out in a double canoe and only for short times
because being hypotonic it's very hard work maintaining my position. I'm
not sure why you think I've jumped out of an aircraft because I haven't and
I'm not sure if I'd like to. My mother thinks me intrepid but this may
just be relative to her. I also go in the hydro pool twice a week normally
which is gloriously gorgeous: the water is very warm and bath-like so as
not to tense motionless limbs. I have 2 helpers to ensure I don't sink and
to both facilitate my small voluntary movements that a trained carer can
feel when working hands-on and to ensure that I am moved through the
complete joint ranges and given a good stretching. It makes me sleep all
afternoon afterwards but at the time I feel fitter and free-er than any
other and tinglingly alive in my whole being, a united entity not a brain
inside a useless shell. My mother has had to learn computing skills as my
communication has expanded and overtaken the usefulness of spiral bound
notebooks. I direct her in what I want. She is my slave, and quite a nice
one. She is 44, prone to horrible migraines and travel sickness and has
no satisfying career because of me. She is however Chair of a respected
local charity and has been responsible for securing funds that now allow
them to employ 4 advocates to help other parents of kids with SEN. She
graduated a very long time ago from Oxford University in some mish-mash
degree that involved social and biological sciences. She is far more
practical than academic. I must not forget to tell you that she is not
English but Scottish because Scots are touchy about these things and she
gets so very homesick sometimes - I think that gets worse as the Scottish
Parliament approaches.
>For example, can you sit up in a chair by yourself?
Depends on the chair, but I can't be safely left unattended.
>What
> kind of a vehicle is necessary for transport?
>
At home I travel in a specially converted camper van and in my wheelchair
(clamped down to track in the floor, and with a huge 4 point selt belt also
clamped to the track). During the last fortnight my mum and Carol, one of
my family support workers - I have a team of 3 who assist and support mum
in basic care and domestic tasks paid for by the Social Services - have
been sewing me a nice denim waistcoat with a big lot of velcro on the back
and some straps and a velcro pad to fit around an ordinary car seat (estate
or front seat, you need to tie the straps at the back of the seat). I
tried out this contraption last Thursday. Getting me up into the van
proved quite a lift for two adults and when I was there I chortled
uproariously and out loud (unusually) and waved my hands about in a rather
uncontrolled fashion out of sheer excitement. Since mum was driving this
didn't matter one jot - she is both used to me, able to communicate with me
even while trying to drive and an immensely good driver - she passed an
advanced driving test after examination by a police driver when she was
still at Oxford and takes both road safety and first aid very seriously.
Whether I'd be safe in the front seat of a taxi is another matter. If the
traffic was only moving slowly, and I was in some way tied down a pick-up
(eg for a short rural trip) would be ridiculously fun and maybe acceptably
risky. I'd like to have a ride in a rickshaw. A school minibus might also
be possible.
The other transport problem is my wheelchair. It is not a canvas-backed
folding thingy but a monstrous 33kg multi-positioning doodah (not of course
motorised because I can't manage that). It can be taken apart a bit or
stuffed whole into a capacious estate car. If my new welly-boot
wheelchair is ready this week then it may come too. It will be the third
model (I grow!) and allows me to bounce up and down kerbs and rough ground,
get through sand, up and down steps (as in Venice bridges) and paddle
because it is a 2 wheel rickshaw style concoction of my mother's that is
much lighter in weight also than my ordinary NHS chair but posturally no
good for a long time and therefore no good as a replacement for it. Maybe
that's my mum's next task. The previous models have not folded at all -
it's been hard enough finding anyone to build them, but this new one is
supposed to take apart in sections.
I usually also use a standard ambulance carrychair on staircases, eg when I
visit friends who live in London. This is carried by 2 people, 1 fore, 1
aft. If I bring my cheeri-o chair (welly boot chair), I will probably NOT
bring a third chair although this may be worrying as the cheeri-o chair is
wider and will not necessarily fit domestic staircases, but I can't travel
with everything can I? If a carrychair could be borrowed from anywhere
that would be excellent, but I appreciate that Bangladesh is not London.
The alternative may be to carry me up flights of stairs (if I need to go up
flights of stairs) on a dining-style chair. We are carrying out a test on
this as soon as ever dad comes home (yes it's Sunday afternoon and he's at
work).
> You are to be accompanied by your mother and another assistant. Is the
> assistant male or female? I presume that the assistant needs to be
lodged
> in the same location as you and your mother. Can you sleep in a regular
> bed? How many bedrooms are needed for the three of you?
We will be accompanied by my friend Tom Uglow whose father works as a
lawyer at the university and whose mother is the well-known biographer,
Jenny Uglow. Tom
I first met when he was Head Boy of the local boys' grammar school (that my
brother now attends) and I was a snip of a 7 year old. When I look at
small children now, it amazes me that Tom, and Sarah, then Head Girl of the
girls' grammar school, who introduced me to Tom, and who also remains a
close and dear friend, bothered with me at all, but they have for years now
taken me seriously and included me in various ways in their lives. Sarah
has graduated from Bristol where she read Drama and she's just finished a 3
week run of a one-woman show in London after runs in Bristol and at the
Edinburgh Fringe. She wants, with her producer/director friend Tamara to
put on a public performance of some of my poetry. But that's all now on
hold now I'm going round the world.... Now back to Tom: Tom went off to
Oxford and read Fine Art. I had a wonderful 3 years zipping up and down
every term or so to see him and visit his exhibitions and his friends.
After graduating he went to Zimbabwe for a number of very unhappy months
and came home ahead of schedule and got work as a cocktail barman. He is
now at a London college whose name escapes me doing a Masters in Book Art
and has been given special permission by his tutor to take the time off his
course to help me to realise this trip. He is by nature easy-going and
well-mannered. When he was at Oxford you could see him coming from half a
mile away, he stood out from the crowd of other New College students,
because he wore bright colours mostly purple and never jeans and a sports
jacket. Then he dyed his hair blond and started wearing black clothes all
the time. He's being very boringly conventional now he's 23. He's got
instructions to help mum with currency exchanges and the finances on the
trip, and with exercising and lifting me about. I expect he'll gently
mould himself into a Nice Useful Person. He's useful enough at jumping to
to fetch things and is willing to sleep on sofas or floors if needs be. I
am very very pleased he is coming. Noone felt it was a good idea for mum
to have sole responsibility for me for such a long venture because my care
can be 24 hour round the clock stuff and a second pair of hands that knows
us and our funny little ways is most excellent. He'll be there to help
when I have fits, he'll help to explain things people are always curious
about, he'll (I hope) help to feed me, he knows how long things like
getting me up and ready can take, he'll share the responsibility for
recording the trip photographically (mum's hands will be too full of me
nattering sometimes and we do want to take home some sort of pics) etc etc
etc.
Tom should be under the same roof or he won't be much help to us but my mum
would get embarassed if he was in the same room. However mum and I can
sleep even in the same bed. At home I have a specially wide and low bed
that mum made for my 4th birthday presie (along with an identical smaller
one for my dolly) so that I don't fall out if I wriggle about or throw my
legs
around in the night. Mum needs to sleep close by me (or Tom does) so that
if I am sick or have a nose bleed or some such I get attention. At home
Mum and dad sleep in an adjoining room with the door open and that works
well enough but on holiday I usually share a twin bedded room with my
brother with his bed jammed up against mine so I can't roll out. Mum
usually turns me at least once a night.
I get epilepsy quite a lot of mornings -myoclonic jerking stuff not grand
mal or petit mal seizures - especially when my hair is combed. I hate it
and it lasts up to 20 minutes
and if it's a bad one I sometimes need a sleep afterwards. I can easily be
safe having a fit if supervised by my mum in my wheelchair in a legs up,
tilted back a bit position, although it's more comfortable to be cuddled on
a sofa. I do not lose consciousness and can still even eat and communicate
although usually I'd rather just try to relax and sail off somewhere in my
imagination where there are no fits. Mum does a relaxation exercise with
me that takes me to the sunny Hebridean coast I love.
>Are you
> beginning to see my ignorance of the situation here? Quite a few details
> need to be worked out on this end so that proper housing, diet and
> transport can be arranged.
>
Diet: We are all vegetarians. ie Tom is sometimes and isn't sometimes and
I can't presently recall if he is at the moment or not, but mum and I are.
(O mum's name is Pauline Reid, she's never adopted dad's surname,
apparently that was common enough that vintage of Oxfordy person, although
they did get married - if you call a registry office do a real wedding). I
can eat most things not too badly - another big difference between me and
cerebral palsied persons with no speech - I don't need my food mashed or
liquidised, but I have had to learn how to open my mouth and chew and
swallow. For years I had to be talked through the process and looked thin
and frail with my little stick-like legs but since I turned veggie 41/2 years
ago I've got robust and chubby and very adept at letting food be shovelled
in. (I have to be fed and wear a bib but I don't normally dribble and I
rarely have choking episodes or spluttering though I used to splutter every
time I drank.) I particlarly enjoy Indian food, or at least the sort on
sale in our local take-away restaurant, and pasta. Pizza is OK and mum
makes a mean
veggie crumble and various bean stews called gunges and veggie shepherd's
pie and so on. I like nearly every vegetable I've tried. We do not eat
fish or seafood but we do eat eggs and dairy produce. I am sometimes too
excited to eat anything. This happens mostly
on holiday! or when I am anxious to get on with something more exciting
than eating or when I have an appointment and feel rushed.
Mum doesn't drink alcohol and indeed rarely drinks tea and
coffee, her preferred beverage being freshly boiled hot water. (yuk!).
Drinking has been a big problem for me - and I still only drink cow's milk
(pasteurised) or longlife orange juice (eg Del Monte) although I am
practising drinking cold water. I have not learned how to drink fizzy or
hot drinks, although I can sometimes manage a sip or two. Mum tells me I
should acquire a taste for flat 7up but I'd rather not. When I am ill with
a fever or a cold I can usually be depended on nowadays to drink a
home-made variety of dioralyte that is made from safe water, sugar, salt
and bicarbonate of soda. Generally we only travel around with us the last
of these ingredients and assume that any household has the rest. I also
carry paracetamol suppositories which can be difficult to obtain. It's
opening my mouth that's hard in hot weather or when I am ill and there was
one horrid year when I was 6 or 7 when I was hospitalised 4 times to be
hydrated on a drip. I say horrid because it was, in spite of daily visits
from my amanuensis so that I could keep writing out my music, but it was a
good deal less horrid than being ill and weak for a fortnight and not being
able to spell at all as I got more and more dehydrated and incapable as had
previously happened even with minor infections. I feel much better now I
am both older and somehow fitter. My mum is looking at me quizzically for
she thinks I was fitter when I was a scrawny 5 year old and my legs were
much straighter than they are now - I grow more and more wheelchair shaped
as I can never spend enough growing time in my leg splints or my standing
frame - but I disagree with her, I feel as if I grow more determined and
stronger and more resilient each month that passes. I was much upset when I
developed epilepsy and thought I would die. My legs buckling under me were
at first deeply distressing but now I know it's not surprising. I am much
more aware of the repercussions of disability, the added complexities that
are just that, added complexities I can handle, and in handling them, I
cope
with so much that I am strong. I learn far more than many adults. I have
a window on a world of disadvantage but also meet other people both
able-bodied and
crips who feel grown too by their experiences rather than restricted by
them. I cannot imagine what sort of brat I'd be if I had not got stuff to
cope with.
Notwithstanding all this brave talk, it is sometimes overwhelmingly
difficult, and I cannot often bear to think of my future. I
am very very different from every single person I have met and that is
sometimes the stuff of deepest ferocious despair. I have been at least
twice clinically depressed, but what depresses me most is not my condition
per se but the attitude of people towards me. In particular I am bitter
that my LEA has left me unresourced (unjustly in their own eyes as well as
the Ombudsman's) for over 4 years and that the agreed remedy has not been
acted
upon. The result of promises not being actioned is my being subjected to
scepticism because of my dependence upon my mother for communication, and
fear because I do not readily believe people will be nice to me. When I
was 4, 5, 6 I could communicate fluently through 4 different people and was
labelled gifted and a grammar school was sought for me in spite of my
tender years. Although the LEA funded my music writing for 2 years and
bought me a computer, it does nothing to comply with the law which says
that I should have 2 enablers provided for my care and communication and a
full curriculum of academic study as well as hours devoted to
self-expression such as music-writing. (I have a Statement of Special
Educational Needs.) My LEA stopped funding my music 2 years ago and last
February took away my computer too. It is the stuff of
waking nightmare. They despise my individuality and the headaches it
causes them. It is only the bureaucrats and administrators - tutors,
therapists, doctors are fine - but it saps at one's spirit so. And so much
time is spent writing letters. I wish they had built on my early success
with enablers - how different now my life would be - but you will not
realise how much it would be different and the magnitude of the injustice
done to me without seeing my idiosyncratic and implausible spelling system
- then you will understand.
> A digression. One of my goals in having you visit is for our students to
> see what can be attained if one sets their mind to it despite the
> perceived or real obstacles that may be in the way. Students in an
> International School abroad live rather pampered, mostly secluded,
> privileged lives. At the same time, I hope that you see that in your
> environment you are afforded more opportunities than a person in the
local
> environment here with the same limitations. People in the developed
world
> are the minority. I consider this the "real" world, though I must admit
> that I pamper myself as much as the kids are pampered.
>
Well I'm quite happy to be a role model or some such thing and I'm quite
happy to discuss things like disability rights and the costs thereof,
morality etc - even abortion. My Granny died earlier this year after a few
years of horrible Alzheimers. I have a very very vivid life in many ways
and not being confined to a classroom, I have met all manner of people. I
can confess to wanting to run a mile from some deformed and mentally
handicapped individuals I know, but everyone is loveable - trite but
nonetheless true and almost none more so than my Granny who lost her
ability to talk sense, was embarassing to be out with, became very
difficult to take to the toilet, was bizarre in some respects, had
difficulty in chewing and occasionally had verging on the fatal choking
episodes, had strokes and heart attacks both, and was always happy to see
me. She would try to dance as I stood in my standing frame, try to play
catch with my brother, loved sitting in our sunlit garden, and regarded a
banana as a special treat each week, o and After Eight mint chocolates.
She sang to herself a great deal, having lost her earlier inhibitions in
that respect and she never in spite of all her inabilities lost her
capacity to realise when I was talking to her and mum was speaking my spelt
out words - a most amazing feat but then she also when she was taken on a
trip out to buy shoes acted entirely appropriately as if she had scarecely
got Alzheimers at all, so I suppose she had little boxes in her head as it
were for different situations and one by one they got knocked out by her
senility and she died before the one involved in being in touch with me
clonked it. She used to come out to the seaside with us and eat Turkish
Delight while we watched the snow storms sweeping in or the sun setting or
what have you and she found the world such a beautiful place. Caring for
someone like that isn't hard, even while it's emotionally hurtful to watch
a person lose their skills and physically hard to be there for them
providing the help and supervision. Caring = loving = easy. But not
everyone can care for everyone. There has to be a fit. A empathy. I am
driven up the wall and round the twist by well meaning individuals who pat
me as if I am a labrador but who will not take me seriously as having a
brain. Marks and Spencers lifts are a particular hazard in this regard and
I would spit viciously on the dear ladies given half a chance. Nurses are
nearly as bad, but it's not confined to women, it's something that happens
in a lot of superficial encounters, assumptions are made that are quite
quite erroneous and are based not even on looks but on preconceived ideas
about the disabled. My mother hates the word disabled as it implies no
ability. If one says that I am handicapped that begins a train of thought
that I might be handicapped by my body which wants to do x, y and z.
Anyway, I am very aware of how liucky I am to be living in the UK and in a
nice middle class family. The UK does not suffer horrid diseases, has not
been at war for a couple of generations in any obviously affecting the
general population sort of way (Ireland is very remote you have to
understand), does not have hurricanes as a rule or tsunami or earthquakes,
floods, volcanoes anything that makes one realise the smudge that an
individual is, the power of natural phenomena, the lack of control
experienced by so many in the world is alien here. People expect to be
able to control their lives and find the concept of their own mortality
baffling. I look forward tremendously to stepping outside this frame and
feeling relief at jumping back in. I am very much a product of my
own place and time. Lack of control frightens me. Life on benefits
looming in front of me frightens me. Life in a state without state
benefits is too appalling to contemplate.... but I do want to learn all
about it, as much as ever I can.
I do think in some respect your kids (in the international schools) must be
very strangely brought up, secluded in
their nunneries as it were and without ancient Grannies round the corner,
without a social mix within the class, without a sense of belonging and
committment to the place in which they are living - seriously weird - and
it's not even like in colonial times when the countries were run by
Europeans and there seemed such certainty that development along rigid
European lines was desireable and adherance to the old culture taken for
granted. Presumably you encourage an idea of the international community
and a pluralist tolerant society with basic common human values and an
interest in and respect for the local community - all of which could lead
your kids to feel rootless and unsettled. I wonder if it does. And I have
so many other questions too...
> Back to the subject at hand. If you could please let me know as to your
> daily needs, it would be a tremendous help. Do you have special dietary
> needs?
I've dealt with that one above but forgot to say that mum has an allergy to
MSG.
>Is there possible medical help that needs to be arranged?
I certainly hope not. Please drive me carefully from place to place. I
have read that the major cause of medical care being needed by travellers
is because of traffic accidents
>Do you need rest during the day? What is your normal sleep pattern?
Not as such but I frequently ziz off for 40 winks and sometimes I have a
longer snooze. It is of course possible that our sleep patterns will be
disturbed by our flights. I normally go to bed around 9.30 or 10 pm and get
up at 8 am but I can easily stay up later. Mum needs a good night's sleep
or gets migraines. I usually sleep through unless I am particularly
excited or ill.
>Can we plan activities
> during the day and at night?
That would be very kind of you. The main thing is allowing time for
getting me places and for toiletting needs and so on. These have not been
dealt with but first I must say something about quiet time. I am not good
at rushing about all the time. It's not that I need quiet time about the
house particularly but I need time when I'm out just to feast from where I
am. I am quite happy to watch the world go by a bit and often considerably
more than my dad and bro can tolerate. I am the sort of person eg who
rushes through an art gallery with scarce a glance until something catches
my beady wee eye. Then I will sit for half an hour or more in front of
that one painting and then want to leave. Sometimes I find music is too
overwhelming and don't want to sit through all the pieces in a concert (but
now I usually attend rehearsals which are not at all the same). Sometimes
I just sit and listen to the hums around me - whether that be conversation
in a foreign-speaking clime or a quiet rural solitude. Other times I
"talk" a lot and have very very long conversations, made longer by my
spelling taking longer than ordinary talk.
>What can you think of that we should know?
My spelling is fast enough to be conversational.
I'll try to be good and nice.
> Right now my thinking is to plan a regular day of activities for each
day.
>
Fine. It may be nice to see something of everyday life - go food
shopping,eg.
> May I also be in contact with your father or mother? Do they have an
> email address that I may contact them?
Yes you may, of course. My dad's e-mail address at work is
D.R.Nightingale@ukc.ac.uk.
He is Pro-Vice-Chancellor. I'll tell him tolook out for a missive from you. O and thank you for contacting UNIS. I
have had a nice response and I have also had the offer of the Head's
bungalow in Moshi.
>
> I am excited, we are excited, and we all look forward to you sharing time
> with us.
>
I do too.
I'm sure that is quite long enough for the mo. I'll write if I think of
anything else.
love & kisses
Hero.
PS my friends call me ho, hence hojoy (which my e-pals call me).
PS 2. we've omitted bathrooms and toilets.
I went to the toilet in a most normal fashion from 2 till 9 years old
thanks to a toilet seat my mum
designed and had built at the local hospital. It was a two piece
flat-packing device that could be accommodated in her capacious bag and
therefore I went anywhere. I outgrew it and outgrew the ability to be
squeezed into normal sized cubicles or carried hurriedly upstairs or what
have you. I therefore now wear a thing best described as a nappy. I will
be setting off with 30kg of them! (Each packet of 28 weighs 5 kg). I am
hoping that half of them will be taken directly to Oz by the competition
organisers. By the time I reach you there will therefore not be too large
a bundle. My toiletting needs are therefore quite simple: I require from
time to time a private space where I can either be changed in my wheelchair
(slightly awkward but the normal procedure in disabled toilets in the UK)
or a clean floor space where I can be lain down and stretched out.
Washing is perhaps the biggest difficulty when I am away (it often is at
home too). I usually travel with shower chair (you should see the
entourage when I go for a week to Venice and reach the hotel via the
waterbus because it is level access) but I will not be bringing one. If
there is a shower I can use occasionally, so be it. It needs 2 people to
lift me into a bath but my balance is good enough to sit in one providing I
am very closely supervised, but it's not very relaxing. I often make do
with baby wipes and bed baths.
Washing my hands needs a bowl of water held on my lap by one person while a
second person helps me to put my hands into
the water. Cleanliness is important because I chew my hands quite a lot
and also trail them along beside me like a small toddler touching every
available surface in a way I can't control. Which leads me to the other
thing I've not said. Safety. I can be a danger to myself owing to the
wide discrepancy between brain and body. I have retained infantile
reflexes and that means I reach out even to dangerous things. I cannot
resist touching things that are within reach but I cannot easily let go and
I certainly can't if alarmed. Therefore I cannot be left where I can pull
anything down on top of me or catch hold of hot surfaces or electric flexes
or things that I might ridiculously place in my mouth. This is a
particularly dangerous thing because I cannot spit out or take out with my
hand stuff in my mouth that I don't want there (this applies to food as
well - my mother has sometimes to prise open my jaw and hook out half
digested food that I've suddenly stopped eating eg because the telephone
rings!) I also can't cough strongly. When might I be left alone? Well
the stunningly obvious times are when my mum zips off to the loo, often at
the same time as she washes her hands after changing my nappy. Thus my
nappy changing sites must really be relatively safe. This often means
spacious or spartan. It is also useful if there is an open space where I
can be stretched on the floor during the day at least a couple of times. I
cannot spend all my time in my wheelchair. It is just too static for
comfort.
Now I remember that I must also tell you about my dyspraxic gaze - when I
am tense, as in unfamiliar settings, I have difficulty looking where I want
to look and in transferring my gaze from one place to another. It is much
much better when I get used to people, but I do have several associated
problems, viz picking far away things out of the "ground", eg deer on a
hillside if they're not galloping gaily (although I can see them clearly
once I've found them), looking at things everyone finds interesting if
there's no sound cue to them (I can't look round at the crash on the
motorway if it happened earlier but if it crashes beside me I see it),
looking at books and maps when told to. People can be disconcerted when I
don't make good non-verbal communication, but it's as I said better when I
relax a bit and at home with my family and closely known professionals and
friends really quite if not normal at least quite expressive and
coordinated. ta-ra for now.
Flight times will follow. I arrive from Dubai on an Emirates flight and
leave on Singapore Airlines (1/2 price). The leaving flight is late at
night.
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